Resources for encephalitis

Books

Societies and support groups.

  • Encephalitis 411 is a US organization that has regular support groups run virtually online, that you can join (see here). They also have an overview of encephalitis, FAQs, and practical living advice.

  • Encephalitis international. Information about encephalitis. A general overview is here.

  • The International Autoimmune Encephalitis Society (IAES) is focused specifically on autoimmune forms of encephalitis. It offers patient and caregiver support groups via Facebook and monthly Zoom meetings, as well as educational materials to help navigate diagnosis, treatment, and long-term recovery.

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